Friendships are a difficult thing when you have a chronic illness . Especially when you are surrounded by people who are “normal.” It is a struggle to balance the desire to share what life is like for you and the desire to avoid appearing to be a complainer or a whiner or even worse, a faker. The more I live here at college, the more this becomes a struggle.
I’ve made friends, sure. There are people who I can talk to, but it seems that all of the friendships are superficial. Nothing really goes beyond “how are you” and the obligatory response of “okay.”
I want something more, something deeper. I’m not going to lie, it isn’t the fault of the people I meet, I’ll accept some of the blame. I wear a mask to keep them out. They don’t try to remove it. We all go about our lives happily as if nothing were wrong because no one wants to be uncomfortable. I don’t want to be vulnerable and they don’t want to pry.
It is easy to go through our lives and not let others in to see our vulnerability. It is easy to lead others to believe we are strong when we are weak, but when we do, are we a reflection of God’s strength? When we allow our weaknesses to show through, then we can rely on God and allow His strength to show through.
So, maybe the next time I’m hurting and struggling and someone asks how I am, I should respond with “can you pray for me” and reach out with a little trust, a little faith, and trust God’s strength protect me.
I also have RSD/CRPS and relationships are diffucult even under “normal” conditions.
In order to develop the kind of relationships you are looking for, you have to open up. No, it will not always work out. No, some people are jerks but you need to find othat out early and move on. But, you will eventually find a core group of people who love and accept you for what you are.
Do not let the illness define you. If you do, you will become pain, anger and resentment. People do not like to be around that! You are the same person you were before the illness. Let those traits come through.
It is very difficult to maintain friendships, especially with a condition like RSD. When I became ill, I cut a lot of people out of my life… those superficial friends that were either not adding anything to my life at best or bringing me down. Now, I have a small handful of REALLY good friends from all different areas, the best being my fiance, of course. Social support is very important when dealing with an illness. Do you have anyone you can trust and speak with in your every day life? You can always talk to me!
Thank you for your post! I have just been diagnosed with RSD and I am seeking support through other people with the same condition. I have never been a blogger before, but so starts a new chapter in my life =-)
Yes, yes, yes! God does have a plan for all of this! Keep pushing forward and I am looking forward to following your blog.
amber this is melanie as someome who is feeling your pain i knw its hard to make friends but i pray for you as a fellow christian i love you and want to be good friends with you day or night please call me im not jst saying the words i meann them i would love to have you come visit and hang out i hope we can be friends sincerly melanie